Taking part in research
We run several types of studies in mental and cognitive health.
Some studies involve people with a specific diagnosis and others are open to people without a diagnosis.
There are many ways you can get involved in research at OH CRF.
If you are interested in taking part in research, please email us: oxfordhealth.CRF@nhs.net
Patient and Public Involvement (PPI)
What is PPI?
We believe your voice matters. We are fully committed to working with patient and public contributors. Contributors include patients, potential patients, carers, research participants and advocacy groups.
PPI aims to ensure that research is carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.
PPI improves the quality of our research by making sure that research is delivered and communicated in accessible, person-centred ways. This practice helps develop research that better serves the needs and interests of our community.
Our full Patient and Public Involvement, Engagement and Participation strategy document is available as a PDF here.
How can I get involved?
You may be interested in joining ENGAGE (our patient and public involvement group), volunteering as a participant in a research study, or receiving training through a placement or work experience.
This group aims to improve the experience of research participants, supporting our researchers to develop a friendly and comfortable environment. We usually meet every two months. Our meetings are hybrid, with some people attending in person and others joining via Teams. We are always keen to hear from people who are interested in joining our group.
There are also ad-hoc PPI opportunities, for example reviewing information sheets, supporting on staff interview panels, and attending mock research visits to share your perspective before research participants attend these visits.
What people say about us
111 participants completed our 2023 participant feedback survey
This is what they said | % of respondents choosing agree/strongly agree |
---|---|
The CRF was easy to find | 89% |
The CRF was comfortable | 95% |
The CRF was accessible | 93% |
The CRF was welcoming | 97% |
I understood the aims of the visit today | 98% |
Information was communicated effectively before my visit | 97% |
Information was communicated effectively during my visit | 98% |
My participation was worthwhile | 96% |
I would recommend participating in research at the CRF to family and friends | 94% |
Quotes from participants
I was really listened to…I felt I had made a difference…everything was explained well beforehand and during
They were a great team and really involved me…I felt included and listened to… I was given all the information I needed… They listened to me…We were a good team together and supported each other…this was a really good experience!
I was actively encouraged to comment and I was able to participate fully…Providing a patient perspective, including from my personal experience of participation in a clinical trial for active treatment, means that I can hopefully improve the situation for other patients in future. This includes provision of information which will hopefully be relevant to patients, as well as explaining to clinicians, researchers and admin staff that their perceptions may be different from patient needs and expectations…Communication by email and arranging of online meetings was straightforward and well-handled…They were pleased to hear what I had to say or to suggest…I was always made to feel an integral part of the project.
It was a very interesting experience learning about the different testing techniques.
Very friendly healthcare professionals who made sure information was clearly conveyed and understood.
Appreciate professionals who understand the difficulties and complexity of this disease.
Lovely people and made me feel I was doing something useful.
It was very interesting and valuable to have new experiences. It was great to meet everyone. Everyone acted calmly and did everything to a high-quality.
The friendliness and cheerfulness of the staff. Everything was explained clearly and I was given plenty of space to comment or question.
Feeling like I might be helping medicine go forward.
Welcoming staff and worthwhile research.